history of genetic testing?How are genetic diseases detected?

history of genetic testing?How are genetic diseases detected?
history of genetic testing?How are genetic diseases detected?

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Contributed by: Anjali Dharra

What is the family history/pedigree analysis?

Family history, or pedigree analysis, is an important record of the health conditions/inherited diseases of a person and his/her close relatives. The complete record of a family’s history incorporates health information from three generations of relatives. These three generations include:

  • Children
  • Brothers and sisters
  • Parents
  • Grandparents 
  • Aunts and uncles
  • Nieces and nephews
  • Cousins

Families tend to have a similar genetic background and most often have the same environmental and lifestyle behaviours. These factors together give clues to health conditions that may run in families. Genetic testing provides complete information about a family’s history and the causes of ongoing health conditions and the risks of acquiring new ones. 

By identifying the patterns or health disorders among relatives, expert healthcare professionals can easily determine whether this health condition persists in generations or not, just by looking at the genetic testing report in which multiple genes have been detected and identified to find out the genetic predisposition for health abnormalities and diseases. 

Family history can identify people with a higher than usual risk of many common lifestyle illnesses or disorders, such as high blood pressure, heart disease, stroke, type 2 diabetes, and certain cancers, to name a few. These disorders can be easily influenced by a combination of genetic factors, lifestyle changes, and environmental behaviours. 

In addition to this, family history can also tell about the rare health conditions that are most often triggered by a mutation in genes, namely cystic fibrosis and sickle cell anaemia.

Questions asked by the doctor while studying a family’s history:

Here is a list of questions that are frequently asked by healthcare professionals before recommending genetic testing or prediction of health conditions. These include:

  1. How old you are?
  2. Do you or any of your family members/relatives have/had any long-term mild or chronic health disorders?
  3. How old are they, when they were diagnosed?
  4. Are/were their illnesses under control?
  5. How are/were they treated?
  6. Where do/did they come from/belong to?
  7. Did your late relatives have health problems and what were those problems?
  8. How old were they when they died?
  9. What were the reasons for their deaths?

Answers to all these questions aid healthcare professionals to:

  • Assess the health risks based on your family history and other environmental factors.
  • Recommend healthy diets and lifestyle changes to prevent or treat the diseases.
  • Suggest health screening tests to diagnose the disease at the earliest.

What if you do not uncover your family’s history?

Being aware of the family health history is an important aspect that plays a vital role in adapting a lifelong wellness plan. It might be a possibility that no one in your family or relatives has any past health history or genetic disorders, but you still may have at risk of developing a health disease. This is because of the following reasons:

  • Diet and nutrition
  • Lifestyle behaviours
  • Personal medical history
  • Other environmental factors
  • Being unaware of any family member’s health history
  • Might have family members who died young before developing a health condition into chronic or severe stages such as cardiac diseases, diabetes, cancer, and stroke, to name a few.

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Does delta-8 THC help with anxiety?

Does delta-8 THC help with anxiety?
Does delta-8 THC help with anxiety?

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Delta-8 THC is a type of cannabis with a lower level of psychoactive properties than other types of cannabis. Delta-8 THC is most commonly found in products like vape oils and tinctures.Delta-8 THC is not as psychoactive as different types of cannabis, so it is less likely to cause intoxication. It is also less potent, so you need to use smaller doses to achieve the same effect.

Some people use delta-8 THC to treat conditions like chronic pain, anxiety, and depression. It effectively treats those conditions and does not have the same side effects as other cannabis products.

Uses of Delta-8 THC

Delta-8 THC is a nonpsychoactive cannabinoid found in industrial hemp oil. It has been used to treat various medical conditions for centuries.

Today, Delta-8 THC is used as a therapeutic agent to improve the symptoms of various medical conditions. These include:

  1. Neurodegenerative diseases, such as Alzheimer’s and Parkinson’s diseases
  2. Epilepsy
  3. Autism Spectrum Disorder (ASD)
  4. Anxiety and stress disorders
  5. Cancer treatment side effects
  6. Sleep disorders
  7.  HIV/Aids treatment side effects
  8. Post-traumatic stress disorder (PTSD)

If you’re looking for an alternative to THC distillate, THC-O distillate may be a good option. THC-O distillate is made from cannabis flowers that have been steam distilled. This process removes most of the plant’s cannabinoids, leaving behind only the terpenes. This makes THC-O distillate a more concentrated form of cannabis than THC distillate. It can also be used in place of THC distillate in many recipes.

Delta-8 THC help to cope with anxiety

Delta-8 THC is a type of cannabis that has been shown to help with anxiety and other conditions. It interacts with the body differently than other cannabinoids, which may make it more effective.

Some believe delta-8 THC is the most effective cannabinoid for treating anxiety and other conditions. It interacts with the body differently than other cannabinoids, which may make it more effective.

There are many different brands of delta-8 THC products available on the market today. You can find them in dispensaries, online, or in specialized health stores.

If you are interested in using delta-8 THC to treat your anxiety, speak to your doctor first. They will be able to advise you on how much delta-8 THC to use and when to use it.

The Best Ways to Use Delta 8 THC

1) Tinctures

Delta THC tinctures are a great way to use Delta THC. They are easy to take and can be used in various ways. One of the best ways to use Delta THC is by using tinctures. Tinctures are easy to take and can be used in various ways. You can take them orally, apply them topically, or vape them. They are also a great option for people who want to avoid smoking or vaping cannabis. Tinctures are also a great way to save money. They are affordable and can last for a long time. Plus, they don’t require any special storage or preparation. Simply add Delta THC tincture to your desired beverage or food, and enjoy!

2) Edibles

One of the best ways to use Delta THC is through edible products. Edibles are a great way to enjoy Delta THC’s benefits without worrying about the psychoactive effects. Delta THC can be found in many forms, including capsules, tinctures, and edibles. Each form has its unique benefits and drawbacks.

Capsules are the most common form of Delta THC and are easy to take on the go. However, they often have a strong smell and taste, which some users find unpleasant. THC Lean is also easy to take. They tend to have a more mellow effect than capsules and are less likely to cause nausea or vomiting.

Edibles are the best option for those who want to enjoy the full psychoactive effects of Delta THC. They often have a sweet or sour taste and provide a longer-lasting high than other forms of Delta THC. However, edibles are also the most dangerous way to consume Delta THC. It is important to know your dosage and ensure you don’t overdo it.

3) Vaping

One of the best ways to use Delta THC is to vape it. Vaping allows you to inhale the cannabinoids quickly and easily. Vaporizing also allows you to control your dose, which is essential for people new to cannabis.

Delta THC can also be smoked. This is the most common way people consume marijuana and is the most traditional. Smoking Delta THC allows you to enjoy the flavor and smell of cannabis. It also gives you a quick hit of cannabinoids.

4) Smoking

Delta THC can be used in various ways, but one of the best ways to use it is to smoke it. Smoking Delta THC allows you to enjoy the drug’s benefits without worrying about the smell or other unpleasant side effects.

Smoking Delta THC also lets you take advantage of its psychoactive properties. This means that you can experience the effects of the drug immediately. This is a handy feature if you want to get high quickly.

 

 

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7 Things You Must Know About Diet Supplements

7 Things You Must Know About Diet Supplements
7 Things You Must Know About Diet Supplements

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Many people use dietary supplements to help them get and stay healthy. One type of dietary supplement is herbal medicines or botanicals, also known as “natural products.” Dietary supplements are widely available in pills, powders, or liquids. While there is plenty of evidence that dietary supplements can help prevent and treat nutrient deficiency, there is much less evidence that they can help prevent or treat other diseases. As a result, there is a lot we do not know.

Here are seven things to consider if you are considering or using a dietary supplement.

Take control of your health by becoming a well-informed consumer. 

The standards for marketing supplements differ greatly from those for drugs. For example, supplement marketers are not required to demonstrate to the Food and Drug Administration that their product is safe or effective before it is placed on grocery store shelves. Learn what the scientific evidence says about the safety and efficacy of a dietary supplement. The resources listed below can assist you.

Natural does not always imply safe.

The herbs comfrey and kava can cause severe liver damage. Furthermore, the term “standardized” (or “verified” or “certified”) on a bottle does not guarantee product quality or consistency.

Interactions may occur

Some dietary supplements may interact with medications (prescription or OTC) or other dietary supplements, and others may have side effects on their own. St. John’s wort interacts with many medications in ways that can interfere with their intended effects, including antidepressants, birth control pills, antiretrovirals used to treat HIV infection, and others, according to research.

Be aware of the possibility of contamination. 

Some supplements have been discovered to contain hidden prescription drugs or other compounds, particularly those marketed for weight loss, sexual health (including erectile dysfunction), athletic performance, or body-building.

Consult your healthcare providers. 

Inform your doctors about any complementary health products or practices you use, such as dietary supplements. This gives them a complete picture of what you are doing to manage your health and ensures coordinated and safe care.

You do not urinate supplements, believe it or not.

One of the most common complaints Firisin receives is about “peeing out vitamins.” While certain supplements can cause your urine to turn yellow and even smell unpleasant, this does not mean you are releasing the excess instead; each nutrient has a specific dosing regimen that is either a basic level for optimal health or a therapeutic level that may be required to achieve a specific goal.

Get specific instead of taking a multivitamin.

We are sorry to break it to you, but if you are still taking it. You need to upgrade if you have gummy daily vitamins from when you were a kid. According to nutritionist Jonny Bowden, Ph.D., CNS, a multivitamin is insufficient for most adults to reap the benefits of supplement use.

Conclusion 

Before taking diet supplements, make sure you go through this article so it can help you be on the right track in your new journey. With this information, you can get the most effective diet supplement.

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6 Benefits and Uses of CBD Oil

6 Benefits and Uses of CBD Oil
6 Benefits and Uses of CBD Oil

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Constant headaches, illnesses, sore muscles… as if the stress of everyday life wasn’t enough. We all wish there were a panacea for all our aches and pains, but we still have to look for alternatives to miracle solutions.

Different companies are offering us various supplements and cosmetics formulated to make our daily lives easier and to help our appearance hide signs of aging and exhaustion. There may not be any magical potion on the market yet, but we can make good use of trying out the accessible novelties.

Now, it might be about time to take a closer look at the benefits of using CBD oil. After all, there are more and more companies perfecting CBD products for the growing number of customers, and it is only natural to be curious about the reasons “why.” Read on to learn more about how this natural substance can benefit you!

Here Are The Six Benefits and Uses of CBD Oil

CBD Calms you Down

The calming effect is as broad as it sounds. CBD is helpful in dealing with daily stress and can also be used as a form of support by people dealing with anxiety. It can be added to tea, coffee, or consumed in the form of CBD edibles, among other consumption methods.

People experiencing stress and anxiety should consider full-spectrum CBD products. You don’t need to worry about the intoxicating effects of THC, which can be found in the full-spectrum CBD oil, as it contains only trace levels of the substance (legally no more than 0.3%). CBD has a similar chemical structure to THC but is devoid of its intoxicating properties.

CBD Relieves Pain

CBD oil is mostly associated with pain relief. CBD interacts with the body’s endocannabinoid system (ECS), which is responsible for maintaining certain aspects of our health, including sleep, appetite, and pain response.

For instance, products containing broad-spectrum hemp CBD oil, such as salves, balms, or oil in a bottle with a dropper applicator, are popular among people dealing with pain or inflammation and the side effects of intense physical activity or injuries.

These products can be easily applied directly to the affected area or, in the case of the oil, consumed sublingually.

CBD Reduces Acne

There were times when steroid ointments were on top of the acne treatment methods. Unfortunately, they were often very harsh on the skin and caused irritation or even pain. Now cosmetology has new solutions, and CBD oil cosmetics are among them.

The anti-inflammatory properties of CBD reduce skin irritancy. Besides that, CBD regulates sebum production and heals scars. To reduce acne, you might want to reach for either a pure CBD oil (CBD isolate) or natural cream containing it.

CBD Manages Appetite

The endocannabinoid system is responsible for many different processes in our bodies. One of them is appetite regulation. When this system is not working properly, we may experience sudden hunger attacks or, on the contrary, a loss of appetite.

CBD oil is sometimes used as a means to control appetite. The effect is not as strong as that of pharmaceutical drugs but is much safer and does not lead to addiction.

However, if you’re already talking about other supplements or medications, you should consult a doctor before including CBD in your daily routine.

CBD Supports Recovery After Workout

The benefits of CBD oils are increasingly more popular in the sports environment. After a day of hiking or an intense jogging session, your joints and muscles are tired and tense. Stretching exercises and hot showers sometimes are not enough.

Before going for traditional painkillers, try to complement your usual after-workout ritual with CBD oil balms. The anti-inflammatory properties of CBD will quicken the recovery and soothe the pain of possible injuries.

CBD Is Good for Your Pets

We’re not trying to talk you into getting your puppy high. However, the calming CBD properties can also benefit your furry best friend. There are specially formulated CBD oils and treats that can be used to help your dog or cat that struggles with anxiety or pain.

CBD animal products are available in various forms, such as oils, powders, capsules, or even dog biscuits. It is advisable to start with smaller doses and observe your pet’s reaction before increasing the amount. Also, talk to your vet first.

In Conclusion

There are many reasons why you should look into using CBD oil for the health issues you’re experiencing. It is a natural substance that can help improve your overall health and is unlikely to cause side effects.

Remember that you should always consult your doctor before trying out any new remedy or supplement. This is especially important if you have a serious illness or take other medications!

Also, remember that CBD oil will not provide you with immediate relief from your problems and that it takes time to yield results. This is why it is essential to set realistic expectations before using CBD oil and stick to your plan.

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6 Hazardous Chemicals to Replace at Home with Natural Alternatives

6 Hazardous Chemicals to Replace at Home with Natural Alternatives
6 Hazardous Chemicals to Replace at Home with Natural Alternatives

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Everyone loves a clean home — the smell of cleaning products and detergents is a key indicator of a germ-free, tidy space. However, most chemical household cleaners contain harmful toxins to humans and the environment.

For instance, one recent study found that scented commercial surface cleaners emit high traces of secondary organic aerosols (SOAs) indoors, also generated by cars. While cleaning, SOA concentrations can exceed outdoor levels of air pollutants. People also inhale 1 billion to 10 billion SOA nanoparticles per minute when mopping the floors.

Meanwhile, highly-toxic commercial cleaners severely damage ecosystems as they get flushed through drains and dumped into waterways.

Replacing harmful chemicals with green alternatives can better protect you and the environment while leaving your home sparkling clean.

6 Hazardous chemicals to replace with natural alternatives

1.  All-Purpose Cleaner

Studies have found that 30% of commercial cleaning products contain endocrine-disrupting properties, such as galaxolide, which scientists have linked to thyroid dysfunction, decreased fertility, and genetic damage in marine species.

Although SC Johnson began phasing out galaxolide from its products — Shout, Glade, and OFF! — in 2018, you might still want to use a DIY all-purpose cleaner to be on the safe side.

Making your all-purpose cleaner is easy enough. All you need to do is add distilled water, vinegar, and a pleasant scent — such as fresh herbs, citrus, or essential oils — to a spray bottle.

However, avoiding spraying your granite and marble countertops with vinegar is critical, as its acidity can ruin the sealant.

2.  Furniture Polish

You might think there’s nothing better than wiping away dust with lemon-scented Old English Furniture Polish.

Unfortunately, the Environmental Working Group (EWG) gives it an F rating due to its respiratory, allergen, and cancer risks. Its ingredients — petroleum gases, silicone fluid, and kerosene — have dire impacts on water resources and soil in the environment.

A much safer alternative is equal parts olive oil and vinegar in a jar — you can also add a few drops of essential oils for a fresh scent. Stir the ingredients and apply the mixture to the furniture with a dry, clean cloth.

3.  Paint

Giving your home a fresh coat of paint or simply touching up scuffs and marks reinvigorates the space. However, paint is a highly flammable liquid waste that negatively impacts indoor air quality by emitting volatile organic compounds (VOCs), such as formaldehyde, toluene, and benzene.

According to the American Lung Association, nausea, breathing difficulties, eye irritation, and damage to the central nervous system are possible with VOC inhalation.

Even though many assume zero-VOC paints are less effective, they work just as well as oil-based paints if your project is prepped correctly. Major brands such as Benjamin Moore, Sherwin Williams, and Valspar carry paint products without VOCs.

Keep in mind that even zero-VOC paints might contain some amount of VOCs, but they are at low-enough levels to not cause any concern.

4.  Glass Cleaner

Commercial glass and surface cleaners typically contain butyl cellosolve — a harmful solvent that can lead to eye irritation, vomiting, headache, and a metallic taste.

While it’s unknown what sort of reproductive disruptions butyl cellosolve has on humans, studies have shown that high concentrations can hinder fertility and cause animal birth defects.

Instead, use vinegar to clean windows and mirrors around the house. Vinegar is safe but highly acidic, with a lower ph level that gives it stain-fighting powers to break down minerals.

Alone, vinegar is an excellent natural cleaning solution for fragile surfaces — however, many people combine it with baking soda to lift difficult dirt and grime more easily. Avoid using vinegar on stone, computer or phone screens, or ceramics. You should also avoid mixing it with bleach, which can generate lethal fumes.

5.  Bleach

Bleach is a common, corrosive cleaning agent that can become highly toxic, causing harm to those with respiratory conditions and able to burn skin. It’s also lethal to ecosystem health when it enters waterways.

Consider what you might clean with bleach around the house — clothes, sink drains, toilet bowls, and dirty grout come to mind. A much safer alternative is baking soda, which, along with vinegar, will become your new favorite householder cleaner.

Sprinkle baking soda and vinegar in the toilet and let it sit for 30 minutes, then wipe away and flush for a shiny, bright throne. Equal parts of baking soda and vinegar can make it easier to unclog sink drains.

Since you’re not supposed to use vinegar to clean countertops, you should combine baking soda with liquid castile soap, vegetable glycerin, and essential oils to create an effective cleaning solution.

6.  Air Freshener

Plugging in an air freshener might seem a harmless way to wrap up house cleaning — or perhaps you prefer to light a scented candle to make the space smell homier.

Fragrance chemicals reduce indoor air quality by elevating VOC exposure, triggering ear, eyes, and throat irritation, migraines and nausea. A 2021 study also suggests that scented candles emit nitrogen dioxide concentrations that slightly exceed the safety standards of the World Health Organization (WHO).

Although proper ventilation can significantly improve the risks, an essential oil diffuser will ensure the same results without hazardous chemicals. Additionally, you can combine baking soda and coffee grounds in a small dish to help absorb bad smells from the air. Distilled water and essential oil drops can also make for a delightful room spray alternative.

Clean Your Home Safely with Natural Alternatives

Protect your household and the environment by replacing hazardous household cleaners with natural alternatives. Natural cleaning solutions will result in a clean house that you can rest assured is a healthy home.

 

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7 Reasons Why Your Teenage Daughter Avoids Going To School

7 Reasons Why Your Teenage Daughter Avoids Going To School
7 Reasons Why Your Teenage Daughter Avoids Going To School

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Why does your teenage daughter avoid going to school?

Your teenage daughter is an essential member of your family. You want her to succeed academically. However, she doesn’t feel like going to school today or in the following days.

Something could be horribly wrong. So you want to figure out what the problem might be. This guide will go over the seven reasons why your teenage daughter may be avoiding school.

If you need additional information about your teen and their mental health, BasePoint Academy can help. Visit their website at basepointacademy.com to learn more. Now, let’s take a look at the following possible reasons.

Social anxiety issues

The first on the list is social anxiety. They may be afraid to talk to people or even be in a social situation. Feelings of being judged by others and embarrassment are among the two major fears surrounding this.

This anxiety issue may be enough to where their daily life is disrupted. You can also look for symptoms such as nausea, sweating, fear of talking to a person or in front of a group of people, and nervous shaking, among other symptoms.

It can be a daunting task for many. But encourage them that it’s OK to talk to people and make friends. Don’t force it on them, but be understanding and empathetic.

Bullying

Bullying can affect any teenager. It can also include your daughter as well. Nearly 22 percent of students from 12 to 18 have reported being bullied at school.

Of these instances, they include being insulted or spreading rumors about them. At least five percent were victims of bullying that involved physical activity. Peer pressure has also played a role in bullying as well.

Many teenagers would often avoid school due to ongoing bullying. Every day, at least 160000 students will skip school because of it.

Sexual harassment

Sexual harassment is as serious as bullying. Teenage girls are often experiencing sexual advances at school that are unwanted. In one survey, nearly one-half of middle and high school students were harassed sexually at least once.

At least a third of the students surveyed stated they didn’t want to return from school after it happened. Sexual harassment itself can begin as early as middle school. Even sexual assault may be possible by peers, but the incidents are not always reported out of fear of retaliation or similar results.

Anxiety or depression

Anxiety and depression are two of the most common mental disorders that affect teens. It may be difficult to diagnose depression because teenagers often deal with mood swings. So it may be a good idea to look for additional symptoms.

A mental health professional must diagnose a teenager with anxiety or depression. You will need to watch for signs such as refusing to go to school, withdrawing from social interactions, difficulty concentrating, and feeling hopeless or worthless.

Depression, if untreated, can lead to serious consequences. The most serious of them all is suicide. Within the last two years, more teenage girls have been hospitalized due to suicide attempts.

The increase was 50 percent between the years 2019 to 2021. While teenage girls are more likely to attempt suicide, teenage boys often die from it. It’s important to look out for any warnings pertaining to suicide.

These include but are not limited to messages or poetry they write about death. Talking about death may also be a subtle sign. They may also attempt to give away various items to friends or family.

If your teenage daughter is contemplating suicide, it may be a good time to get them the help they need. Know that they are not alone in their struggles. A mental health professional will help them through the crisis in the best way possible.

PTSD or Acute Stress Disorder

This can stem from a traumatic incident that happened at school. These disorders can develop within a month after it has occurred. These events may include but are not limited to witnessing the self-harm or death of a person.

School shootings may also be an incident where such a disorder can affect a student. They may have survived the attack unscathed or may have been injured. It’s understandable why your teenage daughter may avoid school after such an event.

Social rejection

Social rejection can be embarrassing for a teenager. Such rejection can get to a point where your teenage daughter may not end up in school. This can happen when a friendship between two people may end for whatever reason.

When this happens, social isolation may be something they’ll experience. They feel alone and don’t have anyone to talk to. Social rejection can be as painful as physical pain itself.

It’s one of the major things that teens normally fear the most. This is perhaps one of the reasons why social anxiety exists. If your teenage daughter has mentioned something about ending a friendship, it may be a good idea to talk about it with them.

Listen to them and be as understanding as possible. Know that you are there for them even if anyone else isn’t. As a parent, you want your daughter to feel loved and appreciated.

Let them know that they are better than the people who reject them.

Academic struggles

Academic struggles could play a role in why your teenage daughter may not be going to school. They may feel like they don’t have what it takes to succeed. They may feel like they are stupid.

If they are having struggles academically, make sure they get the help they need. This can be a tutor for a subject they may need to improve on. Remind them that academics are important and there is no shame in struggling.

Not everyone can be perfect when it comes to academics. It doesn’t have to be a competition between your teenage daughter and their peers. Tutoring will help them get better at academics and help rebuild that confidence they may have lacked before.

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Shift in Child Hospice Care Is a Lifeline for Parents Seeking a Measure of Comfort and Hope

Shift in Child Hospice Care Is a Lifeline for Parents Seeking a Measure of Comfort and Hope
Shift in Child Hospice Care Is a Lifeline for Parents Seeking a Measure of Comfort and Hope

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POMONA, Calif. — When you first meet 17-month-old Aaron Martinez, it’s not obvious that something is catastrophically wrong.

What you see is a beautiful little boy with smooth, lustrous skin, an abundance of glossy brown hair, and a disarming smile. What you hear are coos and cries that don’t immediately signal anything is horribly awry.

But his parents, Adriana Pinedo and Hector Martinez, know the truth painfully well.

Although Adriana’s doctors and midwife had described the pregnancy as “perfect” for all nine months, Aaron was born with most of his brain cells dead, the result of two strokes and a massive bleed he sustained while in utero.

Doctors aren’t sure what caused the anomalies that left Aaron with virtually no cognitive function or physical mobility. His voluminous hair hides a head whose circumference is too small for his age. He has epilepsy that triggers multiple seizures each day, and his smile is not always what it seems. “It could be a smile; it could be a seizure,” his mother said.

Shortly after Aaron was born, doctors told Adriana, 34, and Hector, 35, there was no hope and they should “let nature take its course.” They would learn months later that the doctors had not expected the boy to live more than five days. It was on Day 5 that his parents put him in home hospice care, an arrangement that has continued into his second year of life.

The family gets weekly visits from hospice nurses, therapists, social workers, and a chaplain in the cramped one-bedroom apartment they rent from the people who live in the main house on the same lot on a quiet residential street in this Inland Empire city.

A photo shows two nurses attending to 17-month-old Aaron Martinez while his mother, Adriana Pinedo, holds him.
Adriana Pinedo holds her son, Aaron Martinez, during a visit with hospice nurses Raul Diaz (left) and Shannon Stiles. Pinedo describes the weekly hospice visits from nurses, therapists, social workers, and a chaplain as “our lifeline.”(Heidi de Marco / KHN)

One of the main criteria for hospice care, established by Medicare largely for seniors but also applied to children, is a diagnosis of six months or less to live. Yet over the course of 17 months, Aaron’s medical team has repeatedly recertified his hospice eligibility.

Under a provision of the 2010 Affordable Care Act, children enrolled in Medicaid or the Children’s Health Insurance Program are allowed, unlike adults, to be in hospice while continuing to receive curative or life-extending care. Commercial insurers are not required to cover this “concurrent care,” but many now do.

More than a decade since its inception, concurrent care is widely credited with improving the quality of life for many terminally ill children, easing stress on the family and, in some cases, sustaining hope for a cure. But the arrangement can contribute to a painful dilemma for parents like Adriana and Hector, who are torn between their fierce commitment to their son and the futility of knowing that his condition leaves him with no future worth hoping for.

“We could lose a life, but if he continues to live this way, we’ll lose three,” said Adriana. “There’s no quality of life for him or for us.”

Aaron’s doctors now say he could conceivably live for years. His body hasn’t stopped growing since he was born. He’s in the 96th percentile for height for his age, and his weight is about average.

His parents have talked about “graduating” him from hospice. But he is never stable for long, and they welcome the visits from their hospice team. The seizures, sometimes 30 a day, are a persistent assault on his brain and, as he grows, the medications intended to control them must be changed or the doses recalibrated. He is at continual risk of gastrointestinal problems and potentially deadly fluid buildup in his lungs.

Adriana, who works from home for a nonprofit public health organization, spends much of her time with Aaron, while Hector works as a landscaper. She has chosen to live in the moment, she said, because otherwise her mind wanders to a future in which either “he could die — or he won’t, and I’ll end up changing the diapers of a 40-year-old man.” Either of those, she said, “are going to suck.”

While cancer is one of the major illnesses afflicting children in hospice, many others, like Aaron, have rare congenital defects, severe neurological impairments, or uncommon metabolic deficiencies. 

“We have diseases that families tell us are one of 10 cases in the world,” said Dr. Glen Komatsu, medical director of Torrance-based TrinityKids Care, which provides home hospice services to Aaron and more than 70 other kids in Los Angeles and Orange counties.

A photo shows Aaron Martinez sleeping in a crib.
Aaron Martinez sleeps in the bedroom he shares with his mother and father in Pomona, California.(Heidi de Marco / KHN)

In the years leading up to the ACA’s implementation, pediatric health advocates lobbied hard for the concurrent care provision. Without the possibility of life-extending care or hope for a cure, many parents refused to put their terminally ill kids in hospice, thinking it was tantamount to giving up on them. That meant the whole family missed out on the support hospice can provide, not just pain relief and comfort for the dying child, but emotional and spiritual care for parents and siblings under extreme duress.

TrinityKids Care, run by the large national Catholic health system Providence, doesn’t just send nurses, social workers, and chaplains into homes. For patients able to participate, and their siblings, it also offers art and science projects, exercise classes, movies, and music. During the pandemic, these activities have been conducted via Zoom, and volunteers deliver needed supplies to the children’s homes.

The ability to get treatments that prolong their lives is a major reason children in concurrent care are more likely than adults to outlive the six-months-to-live diagnosis required for hospice.

“Concurrent care, by its very intention, very clearly is going to extend their lives, and by extending their lives they’re no longer going to be hospice-eligible if you use the six-month life expectancy criteria,” said Dr. David Steinhorn, a pediatric intensive care physician in Virginia, who has helped develop numerous children’s hospice programs across the U.S.

Another factor is that kids, even sick ones, are simply more robust than many older people.

“Sick kids are often otherwise healthy, except for one organ,” said Dr. Debra Lotstein, chief of the division of comfort and palliative care at Children’s Hospital Los Angeles. “They may have cancer in their body, but their hearts are good and their lungs are good, compared to a 90-year-old who at baseline is just not as resilient.”

All of Aaron Martinez’s vital organs, except for his brain, seem to be working. “There have been times when we’ve brought him in, and the nurse looks at the chart and looks at him, and she can’t believe it’s that child,” said his father, Hector.

A photo shows a nurse giving 17-month-old Aaron Martinez medicine via an oral syringe.
Hospice nurse Shannon Stiles gently administers Aaron Martinez an oral medication. Many hospice organizations are reluctant to take children, whose medical and emotional needs are often intense and complex.(Heidi de Marco / KHN)

When kids live past the six-month life expectancy, they must be recertified to stay in hospice. In many cases, Steinhorn said, he is willing to recertify his pediatric patients indefinitely.

Even with doctors advocating for them, it’s not always easy for children to get into hospice care. Most hospices care primarily for adults and are reluctant to take kids.

“The hospice will say, ‘We don’t have the capacity to treat children. Our nurses aren’t trained. It’s different. We just can’t do it,’” said Lori Butterworth, co-founder of the Children’s Hospice and Palliative Care Coalition of California in Watsonville. “The other reason is not wanting to, because it’s existentially devastating and sad and hard.”

Finances also play a role. Home hospice care is paid at a per diem rate set by Medicare — slightly over $200 a day for the first two months, about $161 a day after that — and it is typically the same for kids and adults. Children, particularly those with rare conditions, often require more intensive and innovative care, so the per diem doesn’t stretch as far.

The concurrent care provision has made taking pediatric patients more viable for hospice organizations, Steinhorn and others said. Under the ACA, many of the expenses for certain medications and medical services can be shifted to the patient’s primary insurance, leaving hospices responsible for pain relief and comfort care.

Even so, the relatively small number of kids who die each year from protracted ailments hardly makes pediatric hospice an appealing line of business in an industry craving growth, especially one in which private equity investors are active and seeking a big payday.

In California, only 21 of 1,336 hospices reported having a specialized pediatric hospice program, and 59 said they served at least one patient under age 21, according to an analysis of 2020 state data by Cordt Kassner, CEO of Hospice Analytics in Colorado Springs, Colorado.

Hospice providers that do cater to children often face a more basic challenge: Even with the possibility of concurrent care, many parents still equate hospice with acceptance of death. That was the case initially for Matt and Reese Sonnen, Los Angeles residents whose daughter, Layla, was born with a seizure disorder that had no name: Her brain had simply failed to develop in the womb, and an MRI showed “fluid taking up space where the brain wasn’t,” her mother said.

When Layla’s team first mentioned hospice, “I was in the car on my phone, and I almost crashed the car,” Reese recalled. “The first thought that came to mind was, ‘It is just the end,’ but we felt she was nowhere near it, because she was strong, she was mighty. She was my little girl. She was going to get through this.”

About three months later, as Layla’s nervous system deteriorated, causing her to writhe in pain, her parents agreed to enroll her in hospice with TrinityKids Care. She died weeks later, not long after her 2nd birthday. She was in her mother’s arms, with Matt close by.

“All of a sudden, Layla breathed out a big rush of air. The nurse looked at me and said, ‘That was her last breath.’ I was literally breathing in her last breath,” Reese recounted. “I never wanted to breathe again, because now I felt I had her in my lungs. Don’t make me laugh, don’t make me exhale.”

Layla’s parents have no regrets about their decision to put her in hospice. “It was the absolute right decision, and in hindsight we should have done it sooner,” Matt said. “She was suffering, and we had blinders on.”

A photo shows Adriana Pinedo sitting at home and feeding her son, Aaron, with a bottle.
Adriana Pinedo spends much of her day alone with her son. She has chosen to live in the moment, she says, because otherwise her mind wanders to a future in which either “he could die — or he won’t, and I’ll end up changing the diapers of a 40-year-old man.”(Heidi de Marco / KHN)

Adriana Pinedo said she is “infinitely grateful” for hospice, despite the heartache of Aaron’s condition. Sometimes the social worker will stop by, she said, just to say hello and drop off a latte, a small gesture that can feel very uplifting. “They’ve been our lifeline,” she said.

Adriana talks about a friend of hers with a healthy baby, also named Aaron, who is pregnant with her second child. “All the stuff that was on our list, they’re living. And I love them dearly,” Adriana said. “But it’s almost hard to look, because it’s like looking at the stuff that you didn’t get. It’s like Christmas Day, staring through the window at the neighbor’s house, and you’re sitting there in the cold.”

Yet she seems palpably torn between that bleak remorse and the unconditional love parents feel toward their children. At one point, Adriana interrupted herself midsentence and turned to her son, who was in Hector’s arms: “Yes, Papi, you are so stinking cute, and you are still my dream come true.”

This story was produced by KHN, which publishes California Healthline, an editorially independent service of the California Health Care Foundation.

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Opponents of California’s Abortion Rights Measure Mislead on Expense to Taxpayers

Opponents of California’s Abortion Rights Measure Mislead on Expense to Taxpayers
Opponents of California’s Abortion Rights Measure Mislead on Expense to Taxpayers

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“With Proposition 1, the number of abortion seekers from other states will soar even higher, costing taxpayers millions more.”

California Together, No on Proposition 1, on its website, Aug. 16, 2022

California Together, a campaign led by religious and anti-abortion groups, is hoping to persuade voters to reject a ballot measure that would cement the right to abortion in the state’s constitution. The group is warning that taxpayers will be on the hook for an influx of abortion seekers from out of state.

Proposition 1 was placed on the ballot by the Democratic-controlled legislature in response to the U.S. Supreme Court’s decision to overturn Roe v. Wade. If passed, it would protect an individual’s “fundamental right to choose to have an abortion,” along with the right to birth control.

California Together’s website says: “With Proposition 1, the number of abortion seekers from other states will soar even higher, costing taxpayers millions more.”

The campaign raised similar cost concerns in a voter information guide that will be mailed out to every registered voter ahead of the Nov. 8 election. One prominent argument is that Proposition 1 will turn California into a “sanctuary state” for abortion seekers, including those in late-term pregnancy — and that would be a drain on tax dollars.

We decided to take a closer look at those eye-catching statements to see how well they hold up when broken down.

We reached out to California Together to find out the basis for its arguments against the measure. The campaign cited an analysis from the pro-abortion rights Guttmacher Institute, which estimated before Roe was overturned that the number of women ages 15 to 49 whose nearest abortion provider would be in California would increase 3,000% in response to state abortion bans. The Guttmacher analysis said most of California’s out-of-state patients would likely come from Arizona because it’s within driving distance.

California Together does not cite a specific cost to taxpayers for the measure. Rather, it points to millions of dollars the state has already allocated to support abortion and reproductive health services as an indication of how much more the state could spend if the proposed amendment passes.

Sources indicate that people are already coming to the state for abortion services.

Jessica Pinckney, executive director of Oakland-based Access Reproductive Justice, which provides financial and emotional support for people who have abortions in California, said the organization had experienced an increase in out-of-state calls even before the high court ruled in June. Pinckney anticipates handling more cases as more states restrict abortion — regardless of Proposition 1’s outcome.

Will It Cost Taxpayers Millions?

In its fiscal year 2022-23 budget, California committed more than $200 million to expanding reproductive health care services, including $20 million for a fund to cover the travel expenses of abortion seekers, regardless of what state they live in. Once it’s up and running in 2023, the fund will provide grants to nonprofit organizations that help women with transportation and lodging.

However, none of that spending is connected to Proposition 1, said Carolyn Chu, chief deputy legislative analyst at the nonpartisan Legislative Analyst’s Office. It’s already allocated in the budget and will be doled out next year regardless of what happens with the ballot measure.

In the end, the Legislative Analyst’s Office found “no direct fiscal effect” if Proposition 1 passes because Californians already have abortion protections. And people traveling from out of state don’t qualify for state-subsidized health programs, such as Medi-Cal, the state’s Medicaid program, Chu added in an interview. “If people were to travel to California for services, including abortion, that does not mean they’re eligible for Medi-Cal,” she said.

Still, Proposition 1 opponents see the cost argument playing out in a different way.

Richard Temple, a campaign strategist for California Together, said a “no” vote will send lawmakers a mandate to stop the support fund. “Defeat Prop. 1, and you send a loud signal to the legislature and to the governor that you don’t want to pay for those kinds of expenses for people coming in from out of state,” Temple said.

What About an Influx of Abortion Seekers?

A key element of California Together’s argument is pegged to the idea that California will become a sanctuary state for abortion seekers. Opponents assert that Proposition 1 opens the door to a new legal interpretation of the state’s Reproductive Privacy Act. Currently, that law allows abortion up to the point of viability, usually around the 24th week of pregnancy, or later to protect the life or health of the patient.

An argument made in the voter guide against the constitutional amendment is that it would allow all late-term abortions “even when the mother’s life is not in danger, even when the healthy baby could survive outside the womb.”

Because the proposition says the state can’t interfere with the right to abortion, opponents argue that current law restricting most abortions after viability will become unconstitutional. They contend that without restrictions, California will draw thousands, possibly millions, of women in late-term pregnancy.

Statistically, that’s unlikely. The state doesn’t report abortion figures, but nationwide only 1% of abortions happen at 21 weeks or later, according to the Centers for Disease Control and Prevention.

Whether there will be a new interpretation if Proposition 1 passes is up for debate.

UCLA law professor Cary Franklin, who specializes in reproductive rights, said that just because Proposition 1 establishes a general right to abortion doesn’t mean all abortion would become legal. Constitutional language is always broad, and laws and regulations can add restrictions to those rights. For example, she said, the Second Amendment to the U.S. Constitution grants the right to bear arms, but laws and regulations restrict children from purchasing guns.

“The amendment doesn’t displace any of that law,” Franklin said.

But current law was written and interpreted under California’s current constitution, which doesn’t have an explicit right to abortion, said Tom Campbell, a former legislator who teaches law at Chapman University. If Proposition 1 passes, courts might interpret things differently. “Any restriction imposed by the state on abortion would have to be reconsidered,” Campbell said.

The Legislative Analyst’s Office concluded that “whether a court might interpret the proposition to expand reproductive rights beyond existing law is unclear.”

California voters will soon have their say.

Polling has found widespread support for the constitutional amendment. An August survey by the Berkeley IGS Poll found 71% of voters would vote “yes” on Proposition 1. A September survey by the Public Policy Institute of California pegged support at 69%.

Our Ruling

California Together warns voters: “With Proposition 1, the number of abortion seekers from other states will soar even higher, costing taxpayers millions more.”

Proposition 1 would protect an individual’s “fundamental right to choose to have an abortion.”

While it could lead to more people coming to California for abortion services, that’s already happening, even before voters decide on the measure.

In addition, Proposition 1 doesn’t allocate any new spending. So the $20 million state fund to cover travel expenses for abortion seekers would exist regardless of whether the constitutional amendment is adopted. Bottom line: A nonpartisan analyst found there will be no direct fiscal impact to the state, and out-of-state residents don’t qualify for state-subsidized health programs.

It’s speculative that Proposition 1 would expand abortion rights beyond what’s currently allowed or that the state would allocate more money for out-of-state residents.

Because the statement contains some truth but ignores critical facts to give a different impression, we rate the statement Mostly False.

Sources

California Together, No on Proposition 1, “Q&A: What You Should Know About Prop 1,” accessed Aug. 22, 2022

Legislative Analyst’s Office, Analysis of Proposition 1, accessed Aug. 22, 2022

Email interview with Kelli Reid, director of client services at McNally Temple Associates, Aug. 24, 2022

Phone interview with Carolyn Chu, chief deputy legislative analyst, Legislative Analyst’s Office, Sept. 12, 2022

CalMatters, “California Fails to Collect Basic Abortion Data — Even as It Invites an Out-of-State Influx,” June 27, 2022

California Health Benefits Review Program, “Analysis of California Senate Bill 245 Abortion Services: Cost Sharing,” accessed Sept. 12, 2022

SB 1142, Abortion Services, accessed Sept. 12, 2022

Phone interview with Richard Temple, campaign strategist for California Together, Sept. 12, 2022

Phone interview with Cary Franklin, law professor at UCLA School of Law, Sept. 13, 2022

Phone interview with Luke Koushmaro, senior policy analyst, Legislative Analyst’s Office, Sept. 13, 2022

Gov. Gavin Newsom, remarks in Sacramento, California, June 27, 2022

Public Policy Institute of California, “PPIC Statewide Survey: Californians and Their Government,” accessed Sept. 13, 2022

California state budget, Health and human services summary document, accessed Sept. 14, 2022

Phone interview with Jessica Pinckney, executive director of Access Reproductive Justice, Sept. 15, 2022

Phone interview with Tom Campbell, law professor at Chapman University, Sept. 15, 2022

SB 1301, Reproductive Privacy Act, accessed Sept. 19, 2022

Email interview with H.D. Palmer, deputy director for external affairs at the California Department of Finance, Sept. 20, 2022

This story was produced by KHN, which publishes California Healthline, an editorially independent service of the California Health Care Foundation.

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

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Buy and Bust: After Platinum Health Took Control of Noble Sites, All Hospital Workers Were Fired

Buy and Bust: After Platinum Health Took Control of Noble Sites, All Hospital Workers Were Fired
Buy and Bust: After Platinum Health Took Control of Noble Sites, All Hospital Workers Were Fired

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The news, under Noble Health letterhead, arrived at 5:05 p.m. on a Friday, with the subject line: “Urgent Notice.” Audrain Community Hospital, Paul Huemann’s workplace of 32 years, was letting workers go.

Word travels fast in a small town. Huemann’s wife, Kym, first heard the bad news in the car when a friend who’d gotten the letter, too, texted.

“Your termination was not foreseeable,” said the letter, dated Sept. 8 and signed Platinum Health Systems, adding that the firing was permanent “with no recourse” and that the “medical facility will be shuttered.”

“I don’t know what my next steps are,” said 52-year-old Huemann, who supervised the laboratory at the Audrain hospital.

The future for the Huemanns, hundreds of other workers, and thousands of patients in two small Missouri towns began to unravel long before that afternoon. The drama playing out in Paul Huemann’s hometown is familiar to many who live in rural America: Communities are so desperate to keep their hospital open that they’re willing to gamble on any buyer, including those backed by private equity.

Sometimes they lose.

Noble Health, a three-year-old private equity-backed startup, had acquired Audrain and nearby Callaway Community Hospital during the pandemic. In March, it suspended all hospital services and later furloughed 181 employees, state records show. 

Noble — facing staggering debt, more than a dozen lawsuits, and at least two federal investigations — struck a deal to sell the hospitals in April to Platinum Neighbors, which is affiliated with Texas-based Platinum Team Management and Platinum Health Systems. In late June, Platinum asked Missouri officials to extend until Sept. 21 a deadline to reopen the hospitals. On Tuesday, Platinum officials told KHN that, “on behalf of Noble,” they asked Missouri regulators for an additional 30-day extension “in an attempt to explore all alternatives for reopening these facilities,” Ryann Gordon, Platinum’s director of marketing, said. “The backpay and health benefits of the employees is of utmost importance.”

Hours before the licensing deadline Wednesday, Platinum submitted a request for a 90-day variance. Missouri regulations do not allow another extension within a year, said Lisa Cox, a spokesperson for the Missouri Department of Health and Senior Services. So the state “worked with them” and granted the request, she said.

Platinum said the hospitals need time to complete construction projects. Audrain’s “emergency room area” has broken windows, and Callaway’s hospital needs “critical repair to the plumbing,” according to the state approval letter. The hospitals can change ownership during the 90 days, Cox said.

Cory Countryman, president of Platinum Health Systems, confirmed the termination of the remaining hospital staff. “We are working with multiple partners to reopen the hospitals,” he said.

That could involve a new owner. One prospect is Owen Shuler, a Georgia-based entrepreneur, who said he is thinking about buying them. Shuler, who was reached by phone after he’d visited the rural communities, said, “I love what I see.”

“It’s heartbreaking as to what has occurred,” said Shuler, whose companies include Bankers Realty Corp. and Shuler Capital Corp. If he bought the hospitals, he said, he would do so as managing director of his new venture, CareONE Global. “In terms of the due diligence, I do not like what I’m seeing and learning,” he said. What he concluded from his review is that “private equity and venture capital need to be kept the heck out of health care.”

On his LinkedIn profile, Shuler said he “brings a lifelong perspective from a family owned skilled care business” as well as expertise in “telemedicine and healthcare services.”

Shuler, who confirmed the hospitals were saddled with substantial debt — “in the ballpark” of $45 million to $50 million — said, “I am not prepared to go on the record about business strategy quite yet.” He said his approach would be “holistic” and include telehealth. Many industry leaders have argued telehealth is a way to bring high-quality medicine to rural communities that can’t afford, and don’t need, a full platoon of specialists on-site.

“Our target is acquiring hospitals in rural and disadvantaged areas and introducing our capabilities to them,” Shuler said, adding that fixing the two “basically broken” Missouri hospitals from the bottom up would be “much easier than trying to go into a healthy system.”

Still, it’s unclear whether Shuler or another buyer will come through and what it would take to reopen them after years of ownership instability and financial trouble.

Venture capital and private equity firm Nueterra Capital launched Noble in December 2019 with executives who had never run a hospital, including Donald R. Peterson, a co-founder who prior to joining Noble had been accused of Medicare fraud. Peterson settled that case without admitting wrongdoing and in August 2019 agreed to be excluded for five years from Medicare, Medicaid, and all other federal health programs, according to the Health and Human Services Office of Inspector General.

Federal regulators did not block the acquisition in which Peterson was involved. “All ownership and managing control information is self-reported,” said Centers for Medicare & Medicaid Services spokesperson Kristen Clemens.

It didn’t take long for problems to surface under Noble Health’s stewardship. Noble has accepted nearly $20 million in federal covid-19 relief funds, including $4.8 million from paycheck protection programs, according to public records.

Yet doctors, nurses, and patients saw evidence that the new owners were skimping on services — failing to pay for and stock surgical supplies and drugs. In Callaway, state inspectors determined that conditions in the hospital endangered patients. Former workers provided KHN bills and pay stubs they said showed Noble had also stopped paying for employee health, dental, vision, and life insurance benefits.

After employees filed complaints about surprise medical bills, the Department of Labor’s Employee Benefits Security Administration launched an investigation in early March, according to a letter sent to the company and obtained by KHN. The department confirmed a second investigation by another one of its divisions, Wage and Hour, into Noble’s management of its Audrain hospital and clinic.

In April, Noble struck a deal to sell both hospitals for $2 and a stock transfer to Platinum, which assumed all liabilities, according to the agreement. In a June 22 letter to state regulators about the hospitals’ operating licenses, Platinum said, “We are requesting this continuance as Noble Health stock has been transferred to Platinum Medical Management.”

While visiting the hospitals in April, Countryman told employees it was a “priority” to pay the back wages Noble owed them.

Neither Noble nor Platinum made good on that in the months since, employees contend. In addition to the federal investigations, nine wage claims — the largest for $355,000 — have been filed against Noble in Kansas, according to data provided through a Kansas Open Records Act request.

By early August, others were recognizing the employee complaints. Principal, which provided dental and vision care coverage, sent letters to workers saying it would not demand that any worker repay benefits the insurer covered after Noble stopped sending premiums for employee coverage. “This situation is not typical,” wrote Principal spokesperson Ashley Miller in an email.

Huemann, as laboratory supervisor, was among the workers who weren’t furloughed in the spring. They reported for work every day in the hopes that the Audrain hospital would reopen. Huemann checked reagents and kept machines operational even as money for supplies was tight.

“We couldn’t get anything,” Huemann said, “so we were living with what we had.”

Huemann, who provided pay stubs to KHN, said he received a paycheck from Noble in late March. He said he did not receive another paycheck until late May. He received regular paychecks in June and early July. But his second July check, under Platinum, was a week late. His final paycheck arrived Aug. 8 and was also late.

His last seven checks came from three companies. They were all on Platinum’s watch: Initially Platinum Neighbors issued the checks, then Callaway County Community Hospital, and finally Noble Health Audrain Inc.

“Everyone cashed their check as soon as they got it,” Huemann said. “There are so many red flags. But you know, we’re at their mercy, we have no control, and we’re still thankful they are saving us.”

The check stubs also show the hospital’s operators deducted $1,385 in total from Huemann’s pay for insurance. The medical insurance was supposed to be with Blue Cross and Blue Shield of Texas, but Huemann said he never received a card and could not confirm coverage.

“I called four or five times on different days,” he said. “They could never find me no matter how they looked me up, with Social Security or date of birth, or anything.”

Countryman referred all financial questions to Platinum’s corporate offices. Ryan Cole, chief executive of Platinum Team, did not directly respond to calls and emails seeking comment.

Some doctors left town as the upheaval swallowed the hospitals.

Others, such as family medicine doctor Diane Jacobi and her nurse practitioner, Regina Hill, joined MU Health Care, affiliated with the University of Missouri, in Mexico, Missouri, the 11,000-person town where Audrain Community Hospital is located.

Jacobi said her patients want local care. “I don’t know if you’re a mama, but if you’re in labor, the idea that you have to spend 45 minutes in a car on the way to the hospital is nerve-wracking,” she said. “It’s safer if you have care.”

Lou Leonatti, an attorney who lives in Mexico, said he feels so strongly that the community needs a hospital and emergency care that he provided loans last year to Noble so the company could meet payroll. Leonatti’s personal $60,000 loan, with an interest rate of about 3%, was due in January but, he said, remains unpaid.

Leonatti helped start Project Sunrise, a local economic development group. If a new agreement is not reached, he said, “we would like to have a Plan B available.”

Peterson, who helped launch Noble’s failed effort to turn around the two Missouri hospitals, seems to have found his Plan B in Dubai. “I’m sitting in the Emirates Air lounge in Dubai marveling at the experience being afforded me at the tender age of 68,” he wrote on LinkedIn. “I’ll be in Riyadh for the next week finishing up due diligence on launching a new business there.”

The post made Tonya Linthacum, a nurse practitioner who worked at Audrain’s cancer screening center for more than two decades, furious. She said that he “destroyed a lot of people’s lives and livelihoods,” adding that “to have someone dupe you like that” and “going on with no consequences. It’s just not the way the world is supposed to be.”

Peterson declined to comment.

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

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Death Is Anything but a Dying Business as Private Equity Cashes In

Death Is Anything but a Dying Business as Private Equity Cashes In
Death Is Anything but a Dying Business as Private Equity Cashes In

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[UPDATED on Sept. 22]

Private equity firms are investing in health care from cradle to grave, and in that latter category quite literally. A small but growing percentage of the funeral home industry — and the broader death care market — is being gobbled up by private equity-backed firms attracted by high profit margins, predictable income, and the eventual deaths of tens of millions of baby boomers.

The funeral home industry is in many ways a prime target for private equity, which looks for markets that are highly fragmented and could benefit from consolidation. By cobbling together chains of funeral homes, these firms can leverage economies of scale in purchasing, improve marketing strategies, and share administrative functions.

According to industry officials, about 19,000 funeral homes make up the $23 billion industry in the U.S., at least 80% of which remain privately owned and operated — mostly mom and pop businesses, with a few regional chains thrown in. The remaining 20%, or about 3,800 homes, are owned by funeral home chains, and private equity-backed firms own about 1,000 of those.

Consumer advocates worry that private equity firms will follow the lead of publicly traded companies that have built large chains of funeral homes and raised prices for consumers. “The real master that’s being served is not the grieving family who’s paying the bill — it’s the shareholder,” said Joshua Slocum, executive director of the Funeral Consumers Alliance, a nonprofit that seeks to educate consumers about funeral costs and services.

Although funeral price data is not readily available to the public, surveys by the local affiliates of the alliance have found that when publicly traded or private equity-backed chains acquire individual funeral homes, price hikes tend to follow.

In Tucson, Arizona, for example, when a local owner sold Angel Valley Funeral Home in 2019 to private equity-backed Foundation Partners Group, prices increased from $425 to $760 for a cremation, from $1,840 to $2,485 for a burial with no viewing or visitation, and from $3,405 to $4,480 for a full, economical funeral.

In the Arizona city of Mesa, the sale of Lakeshore Mortuary to the publicly traded funeral home chain Service Corporation International led to price increases for a cremation from $1,565 in 2018 to $1,770 in 2021, for a burial from $2,795 to $3,680, and for an economical funeral from $4,385 to $5,090.

“We believe our pricing is competitive and reasonable in the markets in which we operate,” a Service Corporation International official said in an email.

Details of those price increases were provided by Martha Lundgren, a member of the Funeral Consumers Alliance of Arizona’s board. She said funeral home acquisitions have led to the cancellation of pricing agreements negotiated on behalf of consumers who are members of the alliance. In 2020, a cremation at Adair Dodge Chapel in Tucson cost members $395, nearly two-thirds off the $1,100 standard price. But after Foundation Partners Group acquired the funeral home, the member pricing agreement was canceled, and the price of a direct cremation rose to $1,370.

Foundation Partners Group officials said the price increases partly reflect the higher price of supplies, such as caskets, as well as increasing labor costs. But most of the increases, they said, represent a move to a more transparent pricing system that includes administrative and transportation fees that other funeral homes add on later.

“We don’t take advantage of people in there when they’re not thinking clearly,” said Kent Robertson, the company’s president and CEO. “That’s just not who we are.”

A big surge of consolidation happened in the U.S. funeral home industry in the late 1980s and early 1990s, and again around 2010, said Chris Cruger, a Phoenix-based consultant to the industry. And acquisitions have reached a feverish pace in the past two to three years. Many investors are banking on a significant uptick in demand for death care services in the coming years as 73 million baby boomers, the oldest of whom will be in their late 70s, continue to age.

“Sheer demographics are obviously in everybody’s favor here,” Cruger said. Funeral homes have attractive margins already, and combining them into chains to share administrative costs could boost profits even more.

Meanwhile, many funeral home owner-operators are reaching retirement age and have no one in the family willing to take over. A 2021 survey by the National Funeral Directors Association found that 27% of owners planned to sell their business or retire within five years.

The desire to sell, combined with the investment money pouring into the field, has driven prices for funeral homes to new heights. Before private equity turned its eye to funeral homes, they were selling for three to five times their annual revenue. “Now I’m hearing seven to nine,” said Barbara Kemmis, executive director of the Cremation Association of North America, a trade group for the cremation industry.

The value in funeral homes lies in more than their brick-and-mortar assets. Funeral home directors are often integral parts of their communities and have established significant goodwill with their neighbors. So when corporate chains acquire these homes, they rarely change the name and often keep the former owners around to smooth the transition.

Tony Kumming, president of the NewBridge Group in Tampa, Florida, helps broker funeral home sales. Many of his clients remain skeptical of the large firms and often will take less money to sell to someone they believe won’t stain their hard-earned reputations. Most former owners plan to live in the community and don’t want their friends and neighbors to be mistreated. “I’m not saying someone is going to take half of what another company is offering,” Kumming said. “But there’s two big pieces to a sale now: That’s money and the right fit.”

Five years ago, when Robert Olthof decided to sell his family’s funeral home in Elmira, New York, he contacted some of the large publicly traded funeral home chains. But as representatives from multiple companies visited him to make their offers, Olthof realized that none of the big chains had sent someone versed in the service side of the business. “They sent their accountants, and they sent their lawyers,” he recalled. “Everything was about the numbers, the numbers, the numbers. And I didn’t like that.”

Instead, Olthof sold to Greg Rollings, a former funeral director who had amassed a privately owned, 90-site chain of funeral homes throughout the Northeast. Rollings had offered less money than the big chains had, but he knew what it was like to be awoken at 2:30 a.m. and put on a suit to go help a grieving family. He knew what it was like to bury a child.

“I can’t put a dollar-amount value on how much it’s really worth selling to a person who is a funeral director themselves,” Olthof said. “Because moving forward, your name is still going to be on the front of that building.”

Victoria Haneman, a Creighton University School of Law professor who studies the funeral home industry, worries that new corporate ownership might be devastating for grieving families. “They are not behaving like normal, rational consumers,” she said. “They’re not bargain-shopping because death is viewed as an inappropriate time to bargain-shop.”

For most families, a funeral will be one of the largest expenses they ever incur. But they often enter the shopping process cognitively impaired by grief and unsure of what is customary or appropriate.

Only 1 in 5 consumers visit more than one funeral home to obtain a price list, according to a 2022 survey commissioned by the Consumer Federation of America. And online comparisons are virtually impossible — a study by the federation and the Funeral Consumers Alliance found that just 18% of the funeral homes they sampled listed their prices on their websites. As a result, families generally lean heavily on the expertise of a single funeral director, who has a motive to sell them the most expensive options. So consumers can be pushed into buying packages for open-casket funerals that include embalming and other services that drive up the cost and may be unnecessary.

“Is that sort of pickled, shellacked, cosmetized, preserved corpse where the future will be? I don’t know that the answer is ‘yes,’” Haneman said. “And I think there are investors who are betting that it’s not.”

Foundation Partners Group is a prime example. Backed by the private equity firm Access Holdings, the funeral home chain shifted five years ago to acquiring funeral homes with high cremation rates. Cremation rates nationally have been steadily climbing over the past two decades, with nearly 58% of families now choosing cremation over casket burials. Foundation Partners expects that rate to hit 70% by 2030.

The company has acquired more than 75 businesses in high-cremation states, including Arizona, California, Colorado, and Florida. Most of those funeral homes average a bit over 150 funerals per year.

Individual funeral homes “don’t have access to marketing budgets, they don’t have access to safety and health plans and benefits and these different things,” said Robertson, the Foundation Partners CEO. “And because we have the ability to drive marketing and do other things, we also take that 150-call firm to maybe 200 calls.”

Robertson said the funeral home industry is different from other sectors that private equity firms might consider investing in, describing it as a calling comparable to working in hospice care. Foundation Partners is fortunate their backers understand the service part of the industry, as well as the financials, he said. “Private equity firms aren’t necessarily known for having deep compassion for people. They’re more known for their financial returns,” he said. “To get both is really important.”

Foundation Partners owns Tulip Cremation, an online service that allows people to order a cremation with just a few clicks — and without having to set foot in a funeral home. Tulip currently operates in nine states where Foundation Partners has funeral homes. The company expects the service to eventually operate nationally.

Haneman said innovative approaches like Tulip’s are sorely needed in the funeral home industry, which has barely changed in 100 years. “It’s absurd to me that the average cost of a funeral is running $7,000 to $10,000,” she said. “People need less expensive options, and innovation is going to get us there.” Tulip charges less than $1,000 for a cremation; ashes are mailed back to the families.

Other online cremation services are Solace Cremation, Smart Cremation, and Lumen Cremation.

“Private equity investment has the potential to go one of two directions: It’s either going to entrench status quo and drive price, or the purpose of the investment is going to be disruption,” Haneman said. “And disruption promises the possibility of bringing more affordable processes to market.”

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

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