Report: Too many donor organs get lost or damaged before transplant. : Shots

Report: Too many donor organs get lost or damaged before transplant. : Shots

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Surgical instruments used in a kidney transplant in 2016. The agency that oversees organ allocation, the United Network for Organ Sharing, is under scrutiny after a report documented loss and waste of donated organs, often because of problems transporting the organs.

Molly Riley/AP


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Surgical instruments used in a kidney transplant in 2016. The agency that oversees organ allocation, the United Network for Organ Sharing, is under scrutiny after a report documented loss and waste of donated organs, often because of problems transporting the organs.

Molly Riley/AP

For the last decade, Precious McCowan’s life has revolved around organ transplants. She’s a PhD candidate studying human behavior from Dallas who’s already survived two kidney transplants. And in the midst of her own end-stage renal disease, her two-year-old son died. She chose to donate his organs in hopes they would save a life.

Now her kidneys are failing again, and she’s facing the possibility of needing a third transplant. Meanwhile, the agency that oversees donations and transplants is under scrutiny for how many organs are going to waste instead of helping patients like her. The agency, the United Network for Organ Sharing, received a bipartisan tongue lashing at a recent Congressional hearing.

“Patients, we’re not looking at that,” McCowan said, referring to the policy debates. “We’re like ‘hey, I need a kidney for me. I need it now. I’m tired of dialysis. I feel like I’m about to die.”

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The number of kidney transplants increased last year by 16% under a new policy implemented by UNOS that prioritizes the sicker patients over those who live closer to a transplant center.

Still, nearly 100,000 patients are waiting on kidneys and even more for other organs. Roughly 5,000 a year are dying on the waitlist — even as perfectly good donated organs end up in the trash. A two-year inquiry by the Senate Finance Committee uncovered numerous incidents that were previously undisclosed publicly.

  • Charleston, South Carolina: In November 2018, a patient died after receiving an organ with the wrong blood type.
  • Las Vegas: In July 2017, two kidney recipients contracted a rare infection. One died days later.
  • Kettering, Ohio: In June 2020, a transplant recipient was informed that he had accidentally received an organ from a donor with cancer and would likely develop cancer.

UNOS has held the contract to manage organ distribution since the beginning of the country’s transplant system in 1984, and now U.S. senators — both Democrat and Republican — are questioning whether it’s time for another entity to step in.

“The organ transplant system overall has become a dangerous mess,” Sen. Elizabeth Warren (D-Massachusetts) said during the Aug. 3 hearing. “Right now, UNOS is 15 times more likely to lose or damage an organ in transit as an airline is to lose or damage your luggage. That is a pretty terrible record.”

Outdated technology has no way to track organs in transit

The investigation places blame on antiquated technology. The UNOS computer system can go down for an hour or more at a time, delaying matches when every hour counts. There’s also no standard way to track an organ, even as companies like Amazon can locate any package, anywhere, anytime.

“I can’t even get a kidney that’s 20 miles away from my transplant center, with UNOS thinking it was in Miami,” said Barry Friedman, director of the transplant center at AdventHealth in Orlando. “It was actually in Orlando, 20 miles away.”

In the decade between 2010 and 2020, the congressional report found UNOS received 53 complaints about transportation including numerous missed flights leading to canceled transplants and discarded organs. The report also cites a 2020 KHN investigation that uncovered many more incidents — nearly 170 transportation snafus from 2014 to 2019. Even when organs do arrive, transplant surgeons say the lack of tracking leads to longer periods of “cold time” — when organs are in transit without blood circulation — because often the transplant surgeons can’t start a patient on anesthesia until the organ is physically in hand.

One in four potential donor kidneys, according to the latest UNOS data, now goes to waste. And that number has gotten worse as organs travel farther to reach sicker patients under the new allocation policy.

Organ deliveries arriving damaged or ‘squished’

At the University of Alabama-Birmingham, a kidney arrived frozen solid and unusable in 2014, said Dr. Jayme Locke, who directs the transplant program. In 2017, a package came “squished” with apparent tire marks on it (though, remarkably, the organ was salvaged). And in one week in May of this year, Locke said four kidneys had to be tossed for avoidable errors in transportation and handling.

“Opacity at UNOS means we have no idea how often basic mistakes happen across the country,” she said.

UNOS CEO Brian Shepard has already announced he’s stepping down at the end of September. He defends the organization he’s led for a decade, pointing to the rising rate of transplants.

The new kidney allocation policy, which was challenged in court, is partly responsible for that increased transplant rate. The policy also contributed to equity gains, boosting transplants for Black patients by 23%. Black patients, who are more likely to suffer from kidney failure, have had difficulty getting onto transplant lists.

“While there are things we can improve — and we do every day — I do think it’s a strong organization that has served patients well,” Shepard said.

Another independent government report published this year found that any blame should be shared with the hospital transplant centers and the local organizations that procure organs from donors. The three entities work together but tend to turn into a triangular firing squad when people start asking why so many patients still die waiting for organs.

“[UNOS] is not the only source of problems with efficiency in the system,” said Renée Landers, a law professor who leads the biomedical concentration at Suffolk University. She was on the committee that helped produce the broader report. “Everybody had some work that they needed to do.”

The recent watchdog reports, as well as several ongoing legal battles over revised organ distribution maps, are just noise to Precious McCowan of Dallas, as she faces the prospect of trying to get on yet another waitlist. She said she’s encouraged by the rising transplant rate, especially for Black patients like herself, but also fears she may not get so lucky with a third round on the waitlist.

“I just need a kidney that works for me,” she said. “And I need it now.”

This story comes from NPR’s health reporting partnership with Nashville Public Radio and KHN (Kaiser Health News).

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Can the U.S. get the monkeypox vaccine campaign on track by splitting up doses? : Shots

Can the U.S. get the monkeypox vaccine campaign on track by splitting up doses? : Shots

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In many places, there’s still a major shortage of monkeypox vaccines. A plan to stretch the U.S. supply could help get shots into arms more quickly, but it’s also untested and introduces new challenges.

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In many places, there’s still a major shortage of monkeypox vaccines. A plan to stretch the U.S. supply could help get shots into arms more quickly, but it’s also untested and introduces new challenges.

Richard Vogel/AP

After a bumpy start, the Biden administration is trying to smooth out the vaccination campaign aimed at controlling the country’s growing monkeypox outbreak.

The effort now rests on a new and untested strategy of dividing up what were previously full doses in order to stretch the limited stockpile of vaccines in the U.S.

This comes as monkeypox cases have climbed well above 14,000 in the U.S. – a case count higher than any other country in the world – and yet many local health departments still report not having enough vaccines to reach all those who are considered at heightened risk of contracting the disease.

“We are definitely in what we’re still calling ‘The Hunger Games’ phase of this – where there’s nowhere near enough doses for the demand,” says Dr. Mark Del Beccaro, Assistant Deputy Chief for Public Health – Seattle & King County.

Already facing the expected logistical hurdles of running a vaccine campaign in a public health emergency, health officials now have to tackle another challenge: how to squeeze five doses out of single-dose vials.

“It’s great that we are able to increase the number of people we can vaccinate with the current supply,” says Claire Hannan, head of the Association of Immunization Managers. Still, “when you make a change like that, it’s kind of like turning the barge around in the middle of the sea.”

The change poses challenges with messaging and logistics – training providers and getting the right equipment – and it raises concerns among some over equity as early vaccine data rolls in, showing significant racial disparities.

Stretching a limited supply

The U.S. government’s plan to get the disease under control is largely based on giving out the JYNNEOS vaccine, a two-shot series against monkeypox made by Bavarian Nordic.

But a series of missteps at the start of the response left the U.S. with a major vaccine shortage. The federal government was slow to order vaccines, allowing other countries to jump the queue, and distribution has been chaotic for states and cities.

So far, the U.S. has shipped around 700,000 vials of the monkeypox vaccine to states and territories for distribution. The Centers for Disease Control and Prevention has said the first priority is to vaccinate the 1.7 million people who are considered at highest risk.

Facing a shortage in vaccines, the Food and Drug Administration authorized a new dosing strategy last week: the vaccine can now be administered using an “intradermal injection” – where the vaccine is injected into the skin – rather than the typical method of injecting into the layer of fat underneath the skin.

“This action serves to markedly increase vaccine supply,” said Dr. Rochelle Walensky, director of the CDC, in a video released this week. “Intradermal administration of the JYNNEOS vaccine allows vaccine providers to administer a total of up to five separate doses from an existing one-dose vial.”

Federal officials are adamant that this smaller amount of vaccine should not be considered a “partial dose” because it’s still able to produce a similar level of immunologic response as the original method of administering the vaccine.

However, the evidence for this method is scant, though it has worked for vaccinating against other diseases.

The theory rests on the fact that there are many immune cells embedded in the skin. “When a vaccine is given into this tissue, you can generate a robust immune response using a smaller amount of vaccine,” said Dr. John Brooks, a medical epidemiologist from CDC in the video, citing a 2015 study on the vaccine. Brooks also stressed that the method has been studied on other vaccines including those for flu and rabies.

One vial equals five doses? Not so fast

There’s also a practical problem with the plan to squeeze five doses out of what was once a single dose:

“It’s just mechanically difficult to do,” says Del Beccaro of Seattle & King County. “The federal announcement of five doses per vial was, I think, incredibly optimistic and what we’re seeing in real life is three to four doses per vial.”

Hannan, head of the Association of Immunization Managers, has heard the same concerns.

Hopefully we will start to see more of the vials yielding five doses, but we’re not really seeing that consistently right now,” she says.

And yet it seems the federal government is assuming five doses per vial as it divvys up the supplies of vaccine and sends those out to health departments, says Del Beccaro.

So far, much of the U.S. vaccine campaign has focused on reaching people who are unvaccinated and at increased risk of contracting monkeypox, but soon health departments will also have to be ready for the influx of people returning for their second doses 28 days later.

In the Seattle area, that could add up to about 4,000 people in the last week of August. And while it continues to be difficult to predict how the federal supply could change, Del Beccaro says currently it looks like they will not be getting enough vaccine to do second shots while also providing first shots at a high rate.

The switch also requires new supplies and training, says Janna Kerins, medical director at the Chicago Department of Public Health. “It means using a different syringe, a different needle,” she says, “So it has taken a bit of time to make sure people have the supplies.”

Plus providers need technical training in how to administer a dose into the skin. And “we also need to educate [providers and the communities they serve] on the data that supports this change,” though there’s not much available, she says.

Distrust and feelings of disrespect

The new dosing strategy is also feeding into a strong sense of inequity among some in the communities most at risk for the disease.

The overwhelming majority of U.S. cases are still being detected among “men who reported recent sexual contact with other men,” CDC director Rochelle Walensky told reporters on Thursday.

Though the data is imperfect, what’s currently available shows another trend: a disproportionately high number of Black and LatinX members of the gay and queer community are getting monkeypox – and they’ve also had a hard time getting access to vaccines.

On August 10, North Carolina’s health department released findings that 70% of the state’s cases have been detected in Black men, but just 24% of monkeypox vaccines have gone to this group.

Chicago is also seeing vaccination gaps in men of color. 30% of the city’s cases have been found among Latino men, but just 15% of vaccines have gone to the Latino population, according to Kerins, in Chicago. “We have some work to do to try to align the doses of vaccine better with those who are [at risk of] becoming cases,” she says.

National data indicates that queer Black and Brown communities are experiencing high rates of monkeypox: 33% of cases are occurring among those who are Hispanic and 28% among those who are Black.

While no national data has been shared on vaccinations, lack of access for these groups is a problem across the board, says Joseph Osmundson, a microbiologist at NYU and a queer community organizer in New York. The new dosing strategy could feed into that.

“We expect the data in New York and elsewhere to be similar,” Osmundson says. “What this [dosing strategy] is doing is using a different dosing regimen for those who get the vaccine late – who are more likely to be working class and more likely to be Black and Brown, who have not had the privilege, the ability to access vaccine yet.”

The disparities in vaccine access have sowed suspicion and distrust in communities of color, says Kenyon Farrow, with the advocacy group Prep4All.

Farrow says public health leaders still have to do more to explain why this new strategy is not necessarily inferior. He says a sentiment he’s seen online, especially from gay men of color, is that “they let White gay men take all the first full doses. And so we’re now supposed to believe that a fifth of that dose is going to do us just as well.”

Federal health officials say they’re working to bridge these disparities.

On Thursday, the White House monkeypox response team announced a pilot program to bring vaccines to Pride festivals and events where they can reach the gay, bisexual and queer communities at highest risk for contracting the virus.

“Many of the events we’re focusing on are events that focus on populations who are overrepresented in this outbreak,” including Black and Latino individuals, Dr. Demetre Daskalakis, deputy coordinator of the national monkeypox response, said on Thursday during a briefing with federal health officials.

“It’s really about positioning messaging and biomedical interventions where people can reach it, and also making sure that we’re going to the right places and talking about the right people.”

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Study: Telehealth could increase physicians’ after-hours work

Study: Telehealth could increase physicians’ after-hours work

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The use of telemedicine and telehealth increased dramatically during the COVID-19 pandemic. For the physicians who used the technology more intensely during that period, more time was spent on after-hours EHR-based clinical and administrative work.

These were among the conclusions of a study of 2,129 physicians that was conducted at New York University Langone Health.

The report, published in JMIR in July, found that time spent on work-related tasks outside clinical hours, often referred to as “work outside work” (WOW), increased “significantly” for those physicians who spent a larger proportion of their time providing care via telemedicine.

“Our study found that telemedicine was less efficient than in-person-based care and increased physicians’ WOW burden,” the researchers noted. “A number of factors may be responsible for our findings that telemedicine increased the after-hours work burden of physicians.”

The study noted, however, that multiple challenges uncovered in early-stage deployments of telehealth during the pandemic — including organizational and technological inefficiencies in design and deployment — could be a key factor in the increased after-hours EHR work burden.

“These issues have been highlighted elsewhere in EHR and digital health technology implementation research, particularly regarding usability and user-experience barriers exacerbated by the scale and abruptness of the transition to telemedicine due to the pandemic,” the study noted.

The disruption of work norms, including new methods of providing care and scheduling arrangements, could also have contributed to the WOW burden.

“Overall, our results suggest that telemedicine is not [a] panacea for the work challenges facing clinicians,” the report noted. “In fact, our evidence during the acute pandemic and after the acute pandemic suggests that rather than reducing administrative burden, telemedicine intensity may increase it, shifting the work temporally and spatially to after-hours work and home.”

WHY THIS MATTERS

Healthcare’s ongoing digital transformation is both contributing to and alleviating clinician burnout.

Two in three clinicians now say treating patients in virtual-only or hybrid care settings best fits their lifestyle, despite a significant lack of interest in telehealth before the pandemic.

Some in the industry advise clinicians interested in telehealth to look for opportunities that prioritize and personalize their experience as clinicians.

THE LARGER TREND

Telehealth adoption is highest among the young, educated and wealthy, according to a December 2021 survey by Rock Health, which revealed an increase in live video telemedicine — and a decrease in satisfaction with telehealth compared with in-person care.

Other studies have indicated telemental healthcare is associated with increased outpatient contact and hospitalization follow-ups

However, that study found that greater use of telehealth among patients with severe mental illness did not affect medication adherence.

ON THE RECORD

“Taking physicians’ clinical load into account, physicians who devoted a higher proportion of their clinical time to telemedicine throughout various stages of the pandemic engaged in higher levels of EHR-based after-hours work compared to those who used telemedicine less intensively,” the study concluded. “This suggests that telemedicine, as currently delivered, may be less efficient than in-person-based care and may increase the after-hours work burden of physicians.”

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New and Noteworthy: What I Read This Week—Edition 190

New and Noteworthy: What I Read This Week—Edition 190

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Research of the Week

Hypothyroid predisposes people to severe COVID.

More steps, less death.

Genetic links to economic outcomes.

Medieval friars were riddled with parasites, probably from fertilizing their fields with their own manure.

To allow speech, the human larynx lost complexity compared to other primates’.

New Primal Kitchen Podcasts

Primal Kitchen Podcast: The Link Between Dairy Intolerance and Dairy Genes with Alexandre Family Farm Founders Blake and Stephanie

Primal Health Coach Radio: Amy Lippmann 

Media, Schmedia

Another terrible nutrition study.

The reality of “plant-based protein food”: gallbladder removal, intense stomach pain, ER visits, crickets from the food company.

Interesting Blog Posts

Why yes, we do have perfect condiments.

Antidepressants don’t work for most people.

Social Notes

More than just protein.

Julia knew.

Everything Else

Checking in on California’s new “free breakfast and lunch for all” program.

Eggs.

Biases against keto in Mediterranean diet studies.

Things I’m Up to and Interested In

Interesting blog post: Improving normal conversations.

Interesting study: In which medical and dental students wear continuous glucose monitors. Plus a video about it.

Interesting question: Is ApoB overrated?

Important: The declining standards of FDA drug approval.

Reminder: Small fish are good to eat.

Question I’m Asking

Have you been eating your seafood?

Recipe Corner

Time Capsule

One year ago (Aug 13 – Aug 19)

Comment of the Week

“Hello Mark,
I always enjoy reading your Sunday commentary. After reading this past Sunday, I wanted to tell you about my father, He will be competing again next year for the world record bench press at at 80 years of age. Invincible to me, he is a perfect example of someone who does not stop. Gym almost everyday and moving a body that can’t be explained at 80years of age. Let me know if you want to anymore updates! Take care! Btw… he benches just under 300 lbs”

-Incredible!

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Is It COVID or Long COVID? Your Organs May Know

Is It COVID or Long COVID? Your Organs May Know

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American College of Cardiology: “ACC Issues Clinical Guidance on Cardiovascular Consequences of COVID-19.”

British Medical Journal: “Risks of Deep Vein Thrombosis, Pulmonary Embolism, and Bleeding After Covid-19: Nationwide Self-Controlled Cases Series and Matched Cohort Study,” “Study Finds Risk of Serious Blood Clots up to Six Months After COVID-19.”

British Society for Immunology: “Long-Term Immunological Health Consequences of COVID-19.”

Cardiovascular Diabetology: “Persistent Clotting Protein Pathology in Long Covid/Post-Acute Sequelae of COVID-19 (PASC) is Accompanied by Increased Levels of Antiplasmin.”

Cell: “Gastrointestinal Symptoms and Fecal Shedding of SARS-CoV-2 RNA Suggest Prolonged Gastrointestinal Infection.”

Frontiers in Endocrinology: “COVID-19 and Diabetes: Understanding the Interrelationship and Risks for a Severe Course.”

Global Autoimmune Institute: “Is Long COVID a New Autoimmune Disease?”

U.S. Department of Health and Human Services: “Services and Supports for Longer-Term Impacts of COVID-19.”

Johns Hopkins Medicine: “Coronavirus: Kidney Damage Caused by COVID-19,” “Heart Problems after COVID-19,” “Long COVID: Long-Term Effects of COVID-19,” “What Does COVID Do to Your Blood?”

Journal of the American Society of Nephrology: “Kidney Outcomes in Long COVID.”

JAMA Cardiology: “Outcomes of Cardiovascular Magnetic Resonance Imaging in Patients Recently Recovered From Coronavirus Disease 2019 (COVID-19).”

The Lancet Diabetes & Endocrinology: “Risks and Burdens of Incident Diabetes in Long Covid: A Cohort Study.”

Leora Horwitz, health systems specialist, co-leader, Clinical Science Core, NIH RECOVER Initiative, NYU Langone Health.

MedRxiv: “Persistent Circulating SARS-CoV-2 Spike is Associated with Post-Acute COVID-19 Sequelae.”

Nature Medicine: “Symptoms and Risk Factors for Long COVID in Non-Hospitalized Adults.”

Nature News: “Coronavirus ‘Ghosts’ Found Lingering in the Gut,” “Diabetes Risk Rises After Covid, Massive Study Finds.”

Nature Reviews Nephrology: “Long COVID and Kidney Disease.”

News release, European Society of Clinical Microbiology and Infectious Diseases.

Radiology: “Lung Abnormalities Depicted with Hyperpolarized Xenon MRI in Patients with Long COVID.”

Nicole Bhave, cardiologist, University of Michigan Health.

Nisha Viswanathan, MD, co-director, Long COVID program, UCLA Health.

PLOS Pathogens: “SARS-CoV-2-Specific T cells Associate with Inflammation and Reduced Lung Function in Pulmonary Post-Acute Sequalae of SARS-CoV-2.”

Science Translational Medicine: “Prothrombotic autoantibodies in serum from patients hospitalized with COVID-19.”

University of Michigan Health: “New Cause of COVID-19 Blood Clots Identified.”

Viruses: “Viruses and Autoimmunity: A Review on the Potential Interaction and Molecular Mechanisms.”

Yale News: “For COVID-19, Endemic Stage Could be Two Years Away.”

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Justice for Sexual Assault Survivors: New Law Offers Healing

Justice for Sexual Assault Survivors: New Law Offers Healing

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Content Warning: This article contains descriptions of sexual assault.

 

Marissa Hoechstetter knew things weren’t quite right. First, there was the question about orgasms posed by Robert Hadden, the older male doctor who became her OB/GYN. Then, in a follow-up appointment early on in her pregnancy, his “overly-handsy” breast exam. It was Hoechstetter’s first pregnancy. Hadden had been recommended by a trusted friend and she believed he would treat her with care. So she brushed off her discomfort, as women in ambiguous situations so often do.

In a subsequent visit, while she lay on the examination table, Hoechstetter felt Hadden rub her clitoris. “Did that actually happen?” she asked herself. The draping around her protruding abdomen obscured any view of his hand. She was near the end of her pregnancy; delivery of her twins was imminent. She told herself she needed to stay focused on a healthy delivery. And she did. In April of 2011, her beautiful twin daughters were born.

But one year later, during the vaginal exam that was part of her one-year postpartum visit, Hoechstetter did not second-guess. The prickle of Hadden’s beard and tongue on her labia were undeniable. “I knew what happened,” she says. “I knew.” Still, she tried to refocus. “Almost everyone I know has some experience that we’ve tried to accept and move on. So I was like, ‘I’m not in danger. I’m not going to see this person anymore. I’ve got to raise my babies and live my life.’”

But the violations of her body, and of the trust she’d placed in the medical establishment, would not abate. The actions of the man then-acting U.S. Attorney Audrey Strauss would later describe as “a predator in a white coat” led her to shun subsequent doctor’s visits, destroyed memories of her pregnancy, and impacted her relationship with her young children. “There was a long time where I didn’t even want to look at baby pictures, because they reminded me of what happened – of the first person to touch my children.”

In late May, New York Gov. Kathy Hochul signed into law the Adult Survivors Act (ASA). The bill gives people like Hoechstetter an opportunity to hold perpetrators, and the systems that protect and enable them, to account – allowing survivors to file claims that would have otherwise been barred due to the statute of limitations.

New Recourse for Survivors

 

In 2019, in the wake of the #MeToo movement and increasing accountability for sex crimes, New York extended the statute of limitations from 3 years to 20 years for adults filing civil lawsuits for certain sex crimes, including forcible touching, sexual abuse, and rape. However, the extension only affected new cases and could not be applied retroactively, which is where the ASA comes in.

The bill creates a one-year “look-back window” that allows individuals who were 18 years of age or older when they were harmed in New York state to file a civil lawsuit against the people, or institutions, that caused injury.

The effort is modeled after the Child Victims Act (CVA), legislation passed by the New York state Senate in 2019, that raised the criminal statute of limitations for child sexual abuse crimes by 5 years and raised the civil statute of limitations for someone seeking redress for physical, psychological, or other harm caused by child sexual abuse to age 55. The CVA look-back window was also scheduled to last for 1 year, but was twice extended due to the COVID-19 pandemic. By the time it closed, over 10,000 cases had been filed not only against individuals but against institutions, including the Boy Scouts of America and numerous Catholic Dioceses. Attorneys anticipate a similar spike of cases with the ASA.

While a growing number of states have opened look-back windows for those who are abused as children, justice for adult survivors of sexual assault has been slow, based on the rationale that adults are better equipped to respond to acts of violence within a predictable time frame. Statutes of limitation are intended to discourage unreliable witness accounts, but they belie how insidious and devastating sexual assault can be.

It Takes Years

“It is very different than if you’re a victim of a robbery where someone comes in and steals your TV or takes your jewelry,” explains Sherri Papamihalis, the clinical director at Safe Horizon Counseling Center, the only outpatient mental health clinic specializing in evidence-based trauma treatment for survivors of crime and interpersonal violence. “With assault, the body becomes the crime scene.” The emotional and physical impacts – ranging from fear, depression and anxiety, to impaired cardiovascular function and PTSD – are not linear and can be hard to detect.

Discrete portions of the brain are responsible for the processing of bodily sensations and memory, but when traumatized, Papamihalis says, experiences can become fragmented and memories are suppressed. “It’s as if you threw a glass down and it shattered.”

That’s why trauma can rise to the surface in unexpected ways at unanticipated times. “Take, for example, a rape survivor who was victimized by an uncle who smoked,” Papamihalis says. “They may only remember the smell of the cigarettes or recall a certain sound. Their body will hold the sensations, but they may not have a linear memory of what happened.” This avoidance is one of the symptoms of PTSD. “The brain tries to protect us from painful memories. Someone might remember bits and pieces of an assault, or they may not remember anything at all.”

For Hoechstetter, the impacts of Hadden’s abuse lodged within her body and psyche took years to be fully revealed. She knew what he had done and felt the impacts of the abuse, but still had to hold down a job, take care of her daughters, and get on with her life. It was only when a relative questioned why women who had been assaulted by Bill Cosby took so long to step forward that she realized she, too, needed to speak up and add her voice to the small chorus of those who had already made claims against her former doctor.

Holding Abusers to Account

Hadden was eventually arrested in 2020 and found to have sexually abused dozens of patients between 1993 and 2012. According to the original indictment, the disgraced doctor “used the cover of conducting medical examinations to engage in sexual abuse that he passed off as normal and medically necessary, when it was neither normal nor necessary – it was criminal.”

Although the number of victims eventually swelled to over 200, many were told their cases were too old to prosecute. Hadden eventually received what Hoechstetter describes as a “slap on the wrist” plea deal in which he lost his medical license, but received no prison time. He was required to register as a sex offender, but only at the lowest level, which kept him off the public registry.

The outcome, prosecutors told Hoechstetter, was the best they could have hoped for. To Hoechstetter, this was another violation – and galvanized her to advocacy. “It went beyond the feelings towards this person who had harmed me, and became a much bigger feeling of rage at the institutional failures of people who said they were supporting and protecting me. Once I realized how deep the corruption went, and how many women he’d abused, I knew that there had to be institutional accountability, too.”

The ASA not only opens up possibilities to hold perpetrators like Hadden to account in civil court, it creates an additional path of recourse against hospitals, churches, schools, or other negligent institutions that may have created conditions that allowed the abuse to occur or continue. Hoechstetter is already involved in litigation against Hadden and Columbia University Irving Medical Center New York-Presbyterian Hospital, but is heartened that the ASA will enable the “dozens and dozens of Hadden victims who keep coming forward and have had no recourse” to benefit. “If we don’t name the harm done at the start, we won’t ever move the needle on sexual violence.”

The Power of Speaking Up

In New Jersey, similar legislation instituted in 2019 gave both child and adult sexual assault survivors 2 years to bring civil claims, regardless of when the abuse occurred. Lawsuits skyrocketed as many of those who had suffered in silence had opportunities to seek restitution. But advocates caution lawsuits and legislation should not be considered the final or only measure of healing.

“Healing is deeply personal and deeply individual,” says Robert Baran, managing director of the New Jersey Coalition Against Sexual Assault (NJCASA), “and the look-back window is always going to be an arbitrary number that will seem insufficient to a large portion of survivors.” But what it does do is expand options, allowing survivors greater opportunity to seek their own versions of justice and accountability. Not everyone has the resources – or will – to move forward with a lawsuit in the prescribed windows, Baran says, but knowing they have the chance to do so is impactful in itself.

For those who are able to come forward, the financial damages that could be awarded through a civil lawsuit can help “shift the burden” of the emotional, financial, and life costs from the survivor to the responsible party. That, Baran says, “can feel empowering, liberating, and vindicating.” While he recognizes that “putting what we could call a ‘price tag’ on pain and trauma doesn’t always feel great,” he explains financial relief can enable people to pursue other avenues for healing, including therapy or time off from work. “It can allow for options that might not have otherwise presented themselves.”

More broadly, he says, there is great power in sharing one’s experience, echoed in what survivor and advocate Marissa Hoechstetter describes as her “full circle” experience. On May 24, 2022, she and her 11-year-old daughters were part of a small group who attended the signing of the ASA. Her girls, she says, were the only children there. They got to have their picture taken with the governor, and told their mom how very proud they were of her.

“To have had this happen to me when I was pregnant, and then be at the bill signing with my kids, it was really emotional,” Hoechstetter says. “I hope I’m teaching my daughters that they need to use their voice if someone hurts them or they see harm being done to other people. That this is what it means to use our voice for good.”

 

Every 68 seconds, an American is sexually assaulted. If you or someone you know has been a victim of sexual assault, you can find resources and 24/7 support at theRape, Abuse & Incest National Network,  1-800-656-HOPE (1-800-656-4673).

The Adult Survivors Act opens a one-year window, during which adult survivors of sexual violence that occurred in New York state can bring their cases in civil court against their abusers or any individuals or institutions that enabled their abuses. The ASA will only set aside the civil statute of limitations for the duration of the one-year window, starting on November 24, 2022, and closing on November 23, 2023. When the window expires, the existing statute of limitations will, once again, take effect.

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An NHL Legend, A Doctor & a Dog Help Addicts Find Hope

An NHL Legend, A Doctor & a Dog Help Addicts Find Hope

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Aug. 19, 2022 — Among hockey fans, Kevin Stevens is a legend. A member of several teams, including the Boston Bruins and the New York Rangers, the now 57-year-old was especially known for being a Pittsburgh Penguin during the team’s Stanley Cup championships in 1991 and 1992.

But the Bostonian is also a recovering addict whose life changed dramatically when he was 28 years old and made “one bad decision” one night.

“I had never done drugs in my life, but someone stuck cocaine in front of me,” he says. “I didn’t know what it was, but I tried it and that changed my life for the next 24 years.”

Stevens forged a long and often well-publicized battle for sobriety with many challenges along the way, including an opioid addiction due to a massive hockey injury (as well as continuing to use cocaine) and an arrest for dealing oxycodone in 2016.

When he entered a guilty plea in 2017, he vowed to turn his life around. Ever since, he has dedicated his life to help others through Power Forward, a nonprofit he started in 2018 that’s focused on raising awareness about addiction.

Bring on the Dogs

Today, Stevens, who currently works as a National Hockey League (NHL) scout, and one of his board members, Michael Hamrock, MD, a primary care and addiction medicine doctor at St. Elizabeth’s Hospital in Boston, have introduced a unique healing method to the list of offerings for people in recovery.

Called the DOER (Dog Ownership Enhancing Recovery) program, a trained support dog — in this case, a golden retriever named Sawyer — will be sent to live with 12 men living in a sober home in the Boston area, in a program that’s the first of its kind in the U.S.

“For the entirety of my practice, my patients have told me over and over again how much their pet dogs have improved their physical and mental health, so I thought we should add this to one of our offerings,” Hamrock says. “I know this will help.”

The day Sawyer was introduced to the residents as part of a pilot program was a joyful one, Hamrock says.

“We brought Sawyer to the backyard and, while on a leash, he went to each resident individually,” he says. “They started patting him and playing with him. I could see the tremendous delight in their eyes.”

The goal: To add more dogs to the program, over time.

“I believe meetings, medications, spiritual care and having a sponsor help with recovery,” he says. “But dogs can provide safety, prevent loneliness, help you reestablish relationships, help you find purpose and value and offer unconditional love.”

And with overdose deaths in the U.S. reaching record levels last year, Hamrock says the time is now to continuing innovating.

“We know the risk factors for heart disease, but we need a better understanding of the brain disease of addiction,” he says, noting that the acronym GAMES offers a good way to quantify the five risk factors: G (genes), A (age of first drug use), M (treated or untreated mental health issues), E (exposure to opioids as a treatment for, say, chronic pain) and S (stress, especially from adverse childhood events) is a good way to quantify risk factors.

But a well-trained dog can mitigate some of those factors.

“We know dogs can reduce stress and enhance mental health,” he says. “We also know that pet dogs can help with accountability, create a caring environment, and fill the void of nurturing. We can really see a difference.”

Ask Stevens and he’ll tell you he’s excited about how service dogs might play a role in helping addicts stay in recovery.

“I think what Michael is doing is pretty neat,” he says. “When he brought this idea to the table, it made sense. Dogs are so great for people and they’re that bright spot in your day. Offering these residents the chance to take care of something will make all the difference.”

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Wind Instruments Don’t Spew COVID More Than Speech: Study

Wind Instruments Don’t Spew COVID More Than Speech: Study

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Aug. 19, 2022 – Good news for music lovers and musicians, too: Wind instruments don’t appear to project COVID-19 particles more than talking does, according to a new study.

New research from the University of Pennsylvania, along with members of the Philadelphia Orchestra, found that wind instruments don’t spread COVID-19 particles any farther or faster than a human would during normal speech.

“We are probably one of the first studies to combine flow and aerosol concentration measurements to study aerosol dispersion from wind instruments,” says Paulo Arratia, PhD, a professor of mechanical engineering and applied mechanics at the university, who led the study.

Arratia and colleagues used a particle counter, humidifier, and green laser to visualize and measure how much and how quickly aerosols shot out of wind instruments (think: brass and woodwinds) as orchestra members played their instrument continuously for nearly 2 minutes. They measured the flow from many instruments, including flutes, clarinets, trumpets, and tubas.

The challenge was finding how far apart musicians could be to play their instruments without requiring a plexiglass barrier or risking the spread of COVID-19 to ensemble members or the audience, Arratia says.

The researchers created a fog-like environment near the instrument’s opening using an ultrasonic humidifier. A green laser lighted the artificial fog. With so much moisture in the air and a light source shining through, Arratia and the other researchers were able to measure the abundance and speed of the aerosolized particles.

Most of the particles released were less than a micrometer thick, like what would occur during normal breathing and speech.

The virus particles weren’t ejected from the opening of wind instruments as violently as they are when a person coughs or sneezes, Arratia says. Indeed, the flow was less than 0.1 meters per second, almost 50 times slower than the speed of a cough or sneeze, which ranges between 5 and 10 meters per second, according to the study.

And the particles from most instruments traveled only about 6 feet before decaying to background air draft levels. Only two instruments in the study, the flute and trombone, sent particles farther than 6 feet before the aerosol dropped to undetectable levels. Therefore, keeping woodwind and brass players 6 feet apart may work for reducing the spread and contamination of COVID-19 particles during live performances as well, Arratia says.

“During the pandemic, orchestras spread out their players and used plexiglass barriers to protect each other from aerosols, which was not ideal for sound quality,” he says. Musical pieces had to be adapted to exclude wind and brass instruments, and venues postponed or canceled many concerts.

Smaller community orchestras faced unique challenges as they tried to follow the COVID-19 protocols set in place by larger orchestras without the same financial resources.

“We don’t have the resources that large orchestras had, there was no way to build plexiglass shields around our musicians,” says Ivan Shulman, MD, the music director of the Los Angeles Doctors Symphony Orchestra. “In fact, other than baffling sound, it did nothing but to redisperse the droplets, at least as far as the information we saw.”

To ensure the safest environment for everyone, Shulman, an assistant clinical professor of surgery at the University of California, Los Angeles, picked pieces like Aaron Copland’s Fanfare for the Common Man, a drum and brass composition that allowed players to be spaced far apart. All members except for the wind and brass section wore masks for every rehearsal and concert, and everyone had to be vaccinated.

“Some orchestras tested all the wind players only, before each rehearsal,” Shulman says. “We didn’t have the wherewithal to actually do that, but with the availability of more testing, we were thinking about doing that when we start again in September.”

While Shulman may not have been able to gauge how his instruments spread particles, his orchestra used a carbon dioxide monitor as a proxy for ventilation in the rehearsal space.

“The evidence we saw was that if you kept the CO2 concentration to less than about 1,100 parts per million, you were safe,” he says. “We never found that we came close to worrisome levels.”

The new findings are reassuring, Shulman says.

“The concern that I have is even with that, in an orchestral setting, how many people want to be near people speaking? Would they rather be further away? We still have to think about people being close.”

Nonetheless, the COVID-19 protocols are worth doing to be able to play again.

“Just the ability to play together was enough to allay people’s fears that it was worth doing,” Shulman says. “We just want to maintain and create a safe space for everybody.”

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Brain-Eating Amoeba May Have Caused Nebraska Child’s Death

Brain-Eating Amoeba May Have Caused Nebraska Child’s Death

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By Cara Murez and Robin Foster HealthDay Reporters
HealthDay Reporter

FRIDAY, Aug. 19, 2022 (HealthDay News) – The death of a child in Nebraska was likely caused by an infection with a “brain-eating amoeba” that occurred after the child swam in a local river, state health officials announced this week.

In a news release, officials said it was the first such death ever reported in the state’s history. Known as Naegleria fowleri, the amoeba can cause primary amebic meningoencephalitis (PAM), a brain infection that is extremely rare, but nearly always fatal.

“Millions of recreational water exposures occur each year, while only 0 to 8 Naegleria fowleri infections are identified each year,” state epidemiologist Dr. Matthew Donahue noted in the news release. “Infections typically occur later in the summer, in warmer water with slower flow, in July, August, and September. Cases are more frequently identified in southern states, but more recently have been identified farther north. Limiting the opportunities for freshwater to get into the nose are the best ways to reduce the risk of infection.”

The U.S. Centers for Disease Control and Prevention is working to confirm the cause of the child’s death through tests, Lindsay Huse, director of the Douglas County Health Department, said during a Wednesday news conference on the child’s death, NBC News reported.

Huse said the child had gone swimming on Aug. 8 in Nebraska’s Elkhorn River, became symptomatic five days later and was hospitalized within 48 hours after symptoms began.

The child, who authorities have not released additional information about out of respect for the family, died on Aug. 18, Dr. Kari Neemann, medical advisor for Douglass County, said during a news conference on the death.

“Right now, we are simply urging the public to be aware and take precautions when they are being exposed to any warm, freshwater sources,” Huse said.

The single-celled organism N. fowleri can be found in soil and in freshwater, such as lakes, streams, hot springs and rivers. It can infect people when contaminated water goes up the nose. The amoeba has been found in Northern states more often as climate change fuels rising air and water temperatures.

The amoeba infects about three people annually in the United States and is typically fatal, according to the CDC. A total of 154 known amebic meningoencephalitis infections happened between 1962 and 2021. Only four of those infected survived.

A Missouri resident also died from infection with the amoeba in July, possibly contracting it while swimming in an Iowa lake.

Swimmers should try to prevent water from entering their noses by plugging their noses if going underwater in freshwater, Huse said. Health officials also suggest not stirring up sediment in shallow warm water. Swallowing water does not cause this infection.

“Make sure that you are not engaging in activities that are causing forceful water up the nose such as water skiing, high speed tubing, those sorts of activities,” Huse said.

More information

The U.S. Centers for Disease Control and Prevention has more on brain-eating amoeba.

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